There is currently nothing that can be done for someone that is diagnosed with LCA, but there is hope.
Leber’s Congenital Amaurosis
Leber‘s Congenital Amaurosis (LCA) is a rare genetic disease that results in a progressive loss of vision. Those affected with LCA eventually will go blind, typically in their late teens to early twenties.
Our Mission: To unite families diagnosed with the rare genetic disease and provide information, support and hope for a cure.
The RDH12 Foundation is the only non-profit totally dedicated to the cure of this rare eye disease. Because RDH12–LCA is so rare it is considered a 'disease orphan'. Hundreds of children around the globe are waiting for a cure.
Your help is essential, and will make a difference—we will never give up on our children, and we will never stop fighting for their well-being.