The RDH12 Family
Our family represents adults, children and their loved ones. We are continually searching for more families who have a diagnoses of RDH12. As a group we are stronger and can support each other and future research. Please contact us if you would like to be added our RDH12 Foundation family.
In September 2018, we had an amazing showing at the Moorefield's Eye Institute in London for our first Patient day.
We also can set up regular conference calls among RDH12 patients. If you would like to join in please contact Silvia. These are informal get togethers over the phone to catch up with each other and discuss research, fundraising and general networking opportunities.