Their Stories
Leber’s Congenital Amaurosis (LCA) is a global genetic disease. These children, adults and families hope that by sharing their stories they will raise awareness and educate others about the disease. Uniting people who share the diagnosis, and raising funds for the advancement of clinical trials can lead to a cure for this rare genetic disease that causes blindness. Roll over an image below, if there is a story to share a link will pop up. Do you have a story to share? Submitit story below and inspire others.
BEN OLSEN
SEEMA
Seema is an energetic, engaging and passionate Visual Awareness and Disabilities expert.
SEEMA

MATHIAS
LILY & BILL
MARIE
ABIAGIL
DARIUS
ANNA



Submit Your Story
Please let us know if you have a story you would like to share with others.